Here's what's on this fickle mind of mine:
My son in Africa: He's dealing with an illness that required hospitalization. We can't really communicate, so I'm quite worried about him. Could be over and done with in no time, could be a long haul. Could be very mild. Could be quite serious. I can't help thinking he wouldn't be there if I hadn't planted the idea.
My faith: I'm turning so much over in my head about groupthink and jingoism and the heartlessness of some people who claim to follow Christ.
My passions: I used to think of myself as a writer. Now, the more I think of writing, the more I think I must have some audacity to believe that I fit into that scene. Or any scene, for that matter. At this point in my life, I feel that anything I write is either adding to the noise. Am I just a clanging cymbal? Do I have anything to contribute in this information age, in this sea of words?
Sexiness: It's sexy to adopt a child from an exotic foreign country. It's not so sexy to adopt a child from 50 miles away who has a learning disability. Do I want to make a difference, or do I want to be sexy?
Education: I'd always chosen to homeschool because I wanted my children to be exposed to a broad variety of subjects and I wanted them to have the freedom to learn at their own pace and according to their interests. Home education, I have always felt, is a superior education. I'd never felt that I wanted to educate for religious reasons, or for social reasons, but now that my children are growing and changing and I'm growing and changing, I see that my reasons always have been mainly social. My daughters are both starting to show interest in attending a local private school, and I'm not so sure how I feel about that. After this year of dealing with the ups and downs of our 14-year-old, Monet, attending this school, I can see how the girls would thrive academically. But socially? It's not that they aren't social girls. They are very, very social girls. But I've been around some of the kids from this school and heard the things my son and other kids have dealt with to have some serious reservations about sending my daughters to school. They're both very smart, outgoing and sweet. I'm worried that even a year in the environment where what you look like and what sports you play are more important qualities than how you treat people and what your passions are will break them into tiny little quivering pieces of self-doubt. I don't, don't, don't want to go there. And yet I fear that my economic abilities limit them from pursuing the kind of education they really desire.
Relationships: There are a couple of people who have really blown my mind this past year with their hubris and selfishness. On one hand, I feel like I am so over these people. On the other hand, it burns me to no end that they don't see how terribly self-centered and hurtful they are. And, if I had another hand, what would be on it is that I want so badly to be at peace with everyone I know that the fact that rifts remain drives me wild. Is it worth it to try to invest time in these relationships, or should I take joy in the peace that is my life with these people removed from it?
My own selfishness. That's all I'll say about that.
And that's all I'll say.
Showing posts with label Sweetheart. Show all posts
Showing posts with label Sweetheart. Show all posts
Friday, January 29, 2010
Thursday, December 24, 2009
::: teach your children well :::
The Baby is six years old. She loves High School Musical, The Beatles, The Monkees, kittens, ballet, working in the garden with mom, reading books, singing opera, wrapping Christmas presents and cuddling. She has beautiful curly golden-brown hair, a graceful, active body, a fabulous laugh, and gorgeous brown eyes.
She also has ichthyosis.
Icthyosis is an inherited skin condition that causes a build-up of dry skin all over the body. The build-up is worse on the hands, feet, elbows and knees, but the dryness is everywhere. Legs. Back. Scalp. Face. And sometimes it can be itchy. In the winter, if lotions isn't applied liberally after every hand-washing, painful, bleeding cracks appear. Because the skin doesn't slough off like it should, it can cause large scales on the legs, very thick elephant-like skin around the wrists and legs, and large flakes of dandruff. When the skin does slough off, it comes off in huge flakes or large quantities (some ichthyosis causes a rapid increase in skin growth) so that linens are always covered in a dust of flaky skin, clothes are coated, shoulders have to be constantly brushed off, and flakes get stuck in the hair, even when you use the best dandruff shampoos.
Because the hands and feet are most affected, people notice the dry skin right away. Think of how many times a day you use your hands around other people. Shaking hands, holding hands, writing, clapping, waving, touching, drawing, raising. Think of how good it feels to wear sandals on a warm day, or to go barefoot. Think of what it's like to wear shorts in the summer, or for a boy to run around shirtless. When a person has ichthyosis, none of these things are easy to do. Even when they don't draw comments and criticisms from others, children and adults alike, sometimes you just want to keep your hands in your pockets, or wear your shoes, or stay in long pants all summer.
The Baby isn't the only one in our family with ichthyosis. Out of our family of seven, six of us have some form of it. My husband Bo and four of the children, Houdin, Monet, Sweetheart and The Baby, all have noticeable ichthyosis. Bard, the oldest, has very mild symptoms, like dandruff, dry fingers in the wintertime, and Keratosis pilaris, which are tiny bumps on the backs of her arms.
But for The Baby and Sweetheart, the only girls in the family with serious presentations of ichthyosis, there are more issues than just the physical discomfort of the defect. They long for smooth, soft skin. They often tell me that they wish they could have skin like mine. The build-up of skin on their feet and hands looks rough, yes, but also dirty. The skin gives the appearance of a child whose hygiene is being neglected. Children on the playground will say, "EW! I'm not touching you!" or "You're gross!" or "What's wrong with your skin?" Many times, in front of the the children, people of all ages, including adults, will make comments about their skin, saying things like, "You need to wash your hands!" or "Your fingers are filthy!" or "Shouldn't you put some lotion on?" The assumption that the child doesn't know how to wash their hands or doesn't know how to apply lotion is demeaning and chips away even more at their self-esteem, negating all of their talents and abilities, and it certainly doesn't help me feel so good about myself as a mom. After all, one of the most important goals in my life is to be a good mother, and when comments are directed toward me about my children's care, as if I'd never thought to buy a bottle of lotion, it chips away at my self-esteem, too.
A few months ago, The Baby showed me a place on her toes where some warts had cropped up. Warts are viruses, and these viruses had probably cropped up because of a crack in her toes sometime during the winter. Shortly after, Sweetheart showed me some warts on her toes, too. As if the Ichthyosis isn't enough, these terrible things had to enter the scene, too. After one very expensive trip to the dermatologist, who said that my children's was one of the worst cases of Ichthyosis she had seen, we were laden with an array of lotions, some over-the-counter and some prescription. It would take a serious effort, but they could have somewhat "normal" skin, she said, if they faithfully followed a certain skincare routine.
For two weeks, we did follow the routine faithfully. A bath, then an application of this kind of cream to the face, and this kind to the elbows and knees, and then this kind over that, and then the discomfort of sleeping in plastic gloves covered in cotton ones.
But little by little, the warts disappeared and the children saw some major improvement in their skin. Little by little, patches of clean, soft skin showed through. And lot by lot, we ran out of the array of very expensive creams. When it was time to order more, I found that the one cream that helped the most had been discontinued. None of the creams can be purchased in any local store--they all must be ordered. And so, because of unavailability, money and inconvenience, the routine was broken, and the hope for "normal" skin slipped away again.
The discomfort of the skin itself is frustrating enough, but now, with Monet in a private school setting for the first time after years of being home educated, the social discomfort of having Ichthyosis is almost overwhelming. Even in a small Christian school, ridicule runs rampant and alienates and breaks young, fragile, insecure hearts. And this, in turn, infuriates the protective mother-bear mama who has to suppress her rage and advise wisely and gently. She isn't always successful. Sometimes, she just wants to go scratch someone's eyes out.
We take things for granted, don't we? Not just big things, like seeing eyes and hearing ears and working limbs and beating hearts, but little things, too, like soft, beautiful skin.
Please take the time today to talk to your children about people they know who might have something about them that seems strange and different--their eyes or their hair or their clothes or their skin--and how hard it is to live with those differences every day. Teach them good manners in dealing with people with differences. Help them to understand that those people have interests and loves and hopes and talents, just like they do, and that they can be a bright light in someone's day if they notice those interests and loves and hopes and talents, take that person by the hand, and be their friend.
labels:
Bard,
Bo,
Houdin,
Monet,
motherhood,
Sweetheart,
The Baby
Sunday, December 20, 2009
::: stream of consciousness whilst listening to beatles rock band :::
Nine batches of white trash down, who knows how many more to go.
Almost all of my Christmas shopping is done.
I'm broke.
We put the tree up today.
It was the first year my family cut it down without me.
I was having a pouting party.
People were being mean to each other, and then they turned on me.
They chose and cut the tree.
I cried in the car alone.
Sometimes Christmas traditions suck
and leave everyone grumpy and depressed.
Houdin called from Africa today.
I miss him.
I woke up the other night worried about him
and the gigantic poisonous snakes in the village
and the inadequate shoes he packed.
I want to send him steel hip waders.
He wouldn't wear them.
I hope he's taking his malaria pills.
He only had four minutes to talk
and we got cut off.
His girlfriend was here. She got to talk to him.
I feel badly that I didn't let everyone say a word or two.
We tried speakerphone, but it was to echoey and no one could hear anything.
He was telling me about how he's learning all about African cuisine,
and how you can make just about anything there into food.
Made this mother-heart kinda worried,
made me think of Christopher McCandless.
I hate to sound selfish, God, but would You mind keeping an eye
on that boy of mine?
And, while you're at it, God, can you work on the heart
of that other boy of mine?
You know the one. Full of hormones and anger and independence,
but still goofy and hyper,
with his mother's talent for losing track of time.
This, his first year of school after having homeschooled all of his life,
has been a rough one.
He gets picked on.
Mostly by girls.
So, naturally, when he comes home, it's time to reverse the roles.
He picks on his little sisters.
Their patience is wearing thin.
Bard is home from college for a few weeks.
She had her nose pierced.
It looks cute, yes, but I can't help remembering
her tiny, perfect, unblemished nose,
that little baby I held to my breast.
Now she walks around the world without me,
making decisions about her life, her future, her body.
I'm peripheral.
That's a little hard to take.
But there are still young ones in the house,
and they still think I'm the center of the universe.
That can be such an ego trip.
It can also be exhausting.
So I need some patience
and some kindness
and an extra helping of forgiveness,
both to hand out
and to cash in on.
The Christmas trees are up.
It's feeling quite festive around here.
I'll post pictures soon.
For now, I think my consciousness has been streamed out.
May God bless this Christmas
and may you be reminded of how very much
you are loved.
Almost all of my Christmas shopping is done.
I'm broke.
We put the tree up today.
It was the first year my family cut it down without me.
I was having a pouting party.
People were being mean to each other, and then they turned on me.
They chose and cut the tree.
I cried in the car alone.
Sometimes Christmas traditions suck
and leave everyone grumpy and depressed.
Houdin called from Africa today.
I miss him.
I woke up the other night worried about him
and the gigantic poisonous snakes in the village
and the inadequate shoes he packed.
I want to send him steel hip waders.
He wouldn't wear them.
I hope he's taking his malaria pills.
He only had four minutes to talk
and we got cut off.
His girlfriend was here. She got to talk to him.
I feel badly that I didn't let everyone say a word or two.
We tried speakerphone, but it was to echoey and no one could hear anything.
He was telling me about how he's learning all about African cuisine,
and how you can make just about anything there into food.
Made this mother-heart kinda worried,
made me think of Christopher McCandless.
I hate to sound selfish, God, but would You mind keeping an eye
on that boy of mine?
And, while you're at it, God, can you work on the heart
of that other boy of mine?
You know the one. Full of hormones and anger and independence,
but still goofy and hyper,
with his mother's talent for losing track of time.
This, his first year of school after having homeschooled all of his life,
has been a rough one.
He gets picked on.
Mostly by girls.
So, naturally, when he comes home, it's time to reverse the roles.
He picks on his little sisters.
Their patience is wearing thin.
Bard is home from college for a few weeks.
She had her nose pierced.
It looks cute, yes, but I can't help remembering
her tiny, perfect, unblemished nose,
that little baby I held to my breast.
Now she walks around the world without me,
making decisions about her life, her future, her body.
I'm peripheral.
That's a little hard to take.
But there are still young ones in the house,
and they still think I'm the center of the universe.
That can be such an ego trip.
It can also be exhausting.
So I need some patience
and some kindness
and an extra helping of forgiveness,
both to hand out
and to cash in on.
The Christmas trees are up.
It's feeling quite festive around here.
I'll post pictures soon.
For now, I think my consciousness has been streamed out.
May God bless this Christmas
and may you be reminded of how very much
you are loved.
labels:
Bard,
Christmas,
Houdin,
Monet,
stream of consciousness,
Sweetheart,
The Baby
Sunday, December 06, 2009
::: this year's christmas find :::
Each year, I try to satisfy my desire for a bedazzled holiday home by adding a bit more to my Christmas decor, usually by shopping the clearance sales after the holiday or by scouring the shelves of My Favorite Thrift Store for the colors and themes I want. This year, the find was about ten bags of vintage wooden ornaments at the Thrift Store, each baggie containing about a dozen ornaments and costing .50 per bag. I remember ornaments like these from when I was a kid dreaming in the Winter Wonderland at Polsky's Department Store downtown or talking to Archie the Snowman at Chapel Hill Mall, so they've gotta be at least 35 years old. These little nostalgia-inducing lovelies found a home dangling from a white tree in the girls' room to induce nostalgia in yet another generation of girlies.
labels:
Christmas,
photos,
Sweetheart,
The Baby
Saturday, November 28, 2009
::: it's been a hard day's night :::
This week, I have all of my kids at home. It hasn't been like this for a while, with Houdin being gone at discipleship training for the past couple of months and Bard off at college. It won't be like this again for a while. On Monday, Bard will head back to college and on Tuesday, 18-year-old Houdin will leave for an eight-month outreach placement to Africa. But while they're all here, I'm reminded of the dynamics of this family, both good and not-so-good. The changes we're experiencing are positive; we're all learning things as we move through this transition towards more permanent change. I'm taking notes, my friends. I'm taking lots of notes.
With all of the Thicket Dweller kids under one roof again, plus a couple of friends along for the ride, it's impossible to avoid a jam session. Most of the family used real instruments to belt out The Beatles, Coldplay, Muse, Leonard Cohen and Kimya Dawson, but a couple who are not as musically adept and a couple who are just plain goofy joined in on the Beatles Rock Band instruments. Can you believe that these silly people played for hours? HOURS? After serving a second dinner and a third dinner and a couple of snacks and a few desserts, this roadie headed for bed. I'm told they knocked off for the night around 3:00 A.M.
With all of the Thicket Dweller kids under one roof again, plus a couple of friends along for the ride, it's impossible to avoid a jam session. Most of the family used real instruments to belt out The Beatles, Coldplay, Muse, Leonard Cohen and Kimya Dawson, but a couple who are not as musically adept and a couple who are just plain goofy joined in on the Beatles Rock Band instruments. Can you believe that these silly people played for hours? HOURS? After serving a second dinner and a third dinner and a couple of snacks and a few desserts, this roadie headed for bed. I'm told they knocked off for the night around 3:00 A.M.
This house will be so different when they're gone.
Wednesday, November 04, 2009
::: created :::
The sunbeams were so gorgeous yesterday that they filled me with a strange sense of nostalgia. It helped immensely that one of them made itself at home in my bedroom, that it chose to highlight something I had completed--washing and folding linens. From my desk, the basket of thrift-store embroidered napkins, cotton tablecloths and quilt-pieced aprons just about drove me to distraction. I loved the look of those freshly-laundered things, and all I had done was wash them and place them in a basket. I hadn't even created them, yet they filled me with a sense of accomplishment. That's no small feat these days.So often, what the sun brings to light, or at least what I see, are my shortcomings. The smudges on the windows, the dust on the bookcase, the handprints on the walls. Is everyone's tendency toward seeing that which is undone? Why can I not focus on those things I've accomplished? Why can I not give thanks for the good things? Why can I not be at peace?
Thankfully, my mother-in-law spent time showing her how to cross-stitch and that has sent Sweetheart's finger flying. She has even taken to teaching her little sister a few simple stitches.
A few years ago, a friend of mine was sharing how her eldest daughter grew up and left home before she realized that she'd never shared with her daughter her passion for preserving. She'd always been so caught up in the actual process that she
never taught her daughter how to put up beans or make jam or can applesauce. Her daughter was now in college, living on the other side of the country, and the realization that she'd "failed" her left my friend weepy and grief-filled.
Shortly after the realization, her daughter called home to give a life update. After some chatting about this and that, the daughter shared offhandedly, "Oh, and guess what, Mom! There was a group of grandmothers who got together to can jelly, so guess what I learned to do!" My friend's shoulders lifted from the relief of that weight. Education never ends! Learning comes from everywhere! Teachers are all around us!
For today, I want to focus on our accomplishments. I want to wander through the day and dip our toes into our interests. I want to trust that my gaps will be filled, that should I forget or skip or run out of time to share some passion of mine with my children, that they'll find it along the way, if that's what they need.
For today, I want to see the beautiful things that the sunbeams illuminate, no matter how small or seemingly inconsequential they might be.
labels:
homemaking,
preserving,
Sweetheart,
The Baby,
thrift store shopping
Saturday, October 31, 2009
Sunday, October 25, 2009
::: seeking the waterfall :::
So, early Saturday morning, while 19-year-old Bard was on Fall break from University, Bo and I woke everyone (except 18-year-old Houdin, who is at Discipleship training for his trip to Africa) early in the morning and prodded them into the car for a road trip. "We'll be in the car for ten hours," we told them. "Bring a change of clothes. And comfortable shoes. And a raincoat. You might get wet!"
They were confused and thrilled as we passed first a sign for Pennsylvania, and then New York, and then, when they just couldn't take it anymore, we told them where we were going. Some were less-than-thrilled. The Baby thought we were going to a movie or an amusement park.
But once they got there, and they saw the rushing Niagara River and the absolutely breathtaking Falls, they were smitten. The winds were high as we rode the crashing waves of Horseshoe Falls on the Maid of the Mist, yanking shouts of joy and amazement from our bodies.
We got wet. Very wet. I was so thankful that we had and brought our waterproof camera. And that change of clothes!
When we all climbed back into the car for the ride home, we were exhilarated, inspired, ALIVE! A stop at Steak 'N Shake for dinner and a run to the Krispy Kreme next door (we can't get Krispy Kreme near us anymore!) made the day just about as perfect as it could get.
No car breakdowns! No major arguments! No unexpected expenses! And our randomized playlist even seemed to cooperate, throwing out songs like "Running with the Buffalo" by Peter Mayer, "Counting Road Signs" by Jonathan Reuel, "Coastline" by Brothers Creeggan, "Get On Your Boots" by U2, and "Suitcase" by Over the Rhine, and, just as we were rounding the last curves before our road at 10:45 PM, "Golden Slumbers" by The Beatles filled the van full of sleeping, sleepy and half-asleep travelers.
While the characters in Whittier's poem below didn't find the waterfall they sought, we did, and we were pleased in the seeking, as well.
Seeking of the Waterfall
~John Greenleaf Whittier
They left their home of summer ease
Beneath the lowland's sheltering trees,
To seek, by ways unknown to all,
The promise of the waterfall.
Some vague, faint rumor to the vale
Of its wild mirth of waters lost
On the dark woods through which it tossed.
Somewhere it laughed and sang; somewhere
Whirled in mad dance its misty hair;
But who had raised its veil, or seen
They sought it where the mountain brook
Its swift way to the valley took;
Along the rugged slope they clomb,
Their guide a thread of sound and foam.
Height after height they slowly won;
The fiery javelins of the sun
With rock and vine their steps delayed.
But, through leaf-openings, now and then
They saw the cheerful homes of men,
And the great mountains with their wall
The leaves through which the glad winds blew
Shared. the wild dance the waters knew;
And where the shadows deepest fell
The wood-thrush rang his silver bell.
Fringing the stream, at every turn
Swung low the waving fronds of fern;
From stony cleft and mossy sod
And still the water sang the sweet,
Glad song that stirred its gliding feet,
And found in rock and root the keys
Of its beguiling melodies.
Beyond, above, its signals flew
Of tossing foam the birch-trees through;
Now seen, now lost, but baffling still
The weary seekers' slackening will.
Its white scarf flutters in the air!"
They climbed anew; the vision fled,
To beckon higher overhead.
So toiled they up the mountain-slope
With faint and ever fainter hope;
With faint and fainter voice the brook
Still bade them listen, pause, and look.
Meanwhile below the day was done;
Above the tall peaks saw the sun
Sink, beam-shorn, to its misty set
"Here ends our quest!" the seekers cried,
"The brook and rumor both have lied!
The phantom of a waterfall
Has led us at its beck and call."
But one, with years grown wiser, said
"So, always baffled, not misled,
We follow where before us runs
The vision of the shining ones.
Their voices while we listen die;
We cannot keep, however fleet,
The quick time of their winged feet.
"From youth to age unresting stray
These kindly mockers in our way;
Yet lead they not, the baffling elves,
To something better than themselves?
"Here, though unreached the goal we sought,
Its own reward our toil has brought:
The winding water's sounding rush,
"The turquoise lakes, the glimpse of pond
And river track, and, vast, beyond
Broad meadows belted round with pines,
The grand uplift of mountain lines!
"What matter though we seek with pain
The garden of the gods in vain,
If lured thereby we climb to greet
Some wayside blossom Eden-sweet?
The fond hope dies as we attain;
Life's fairest things are those which seem,
The best is that of which we dream.
"Then let us trust our waterfall
Still flashes down its rocky wall,
With rainbow crescent curved across
Its sunlit spray from moss to moss.
In thought shall seek it oft again;
Shall see this aster-blossomed sod,
This sunshine of the golden-rod,
"And haply gain, through parting boughs,
Grand glimpses of great mountain brows
Cloud-turbaned, and the sharp steel sheen
Of lakes deep set in valleys green.
And evermore the end shall tell
The unreached ideal guided well.
"Our sweet illusions only die
Fulfilling love's sure prophecy;
And every wish for better things
An undreamed beauty nearer brings.
Desire and hope and longing prove
The secret of immortal youth,
And Nature cheats us into truth.
"O kind allurers, wisely sent,
Beguiling with benign intent,
Still move us, through divine unrest,
To seek the loveliest and the best!
"Go with us when our souls go free,
And, in the clear, white light to be,
Add unto Heaven's beatitude
The old delight of seeking good!"
labels:
Bard,
Bo,
education,
family,
field trips,
homelearning,
Monet,
photos,
poetry,
Sweetheart,
The Baby,
vacations
Sunday, October 18, 2009
::: i found my thrill on chili hill :::
This year, I baked a batch of Brown Butter Toffee Blondies from a recipe I saw on one of my favorite food blogs, honey & jam. I happened to have a big bag of toffee bits that Bo had brought home from the chocolate factory and had been wondering what to do with them, so when I saw the blondie recipe that Hannah had posted, I knew that's what I'd take to Chili Hill.
This year, Steve and Sara's eldest daughter, Laura, is a senior. Because this might be the last Chili Hill Laura, who has been accepted to West Point, will attend for a while, I wanted to get lots of photos. And that I did. :-)
labels:
cooking and baking,
fall,
food,
friends,
lessons from other bloggers,
Monet,
neighbors,
photos,
seasons,
Sweetheart,
The Baby
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